2023-09-14 Cardea Users Group Meeting

Summary

Cardea Lab- Project Overview
Second Thursday of every month: 
Join us for an overview of the project and learn more about the future path of Cardea.
9:00am to 10:00am
(UTC-07:00) Pacific Time - Los Angeles

https://zoom.us/j/91386616588?pwd=MGorZEY1V25XWkJ4dzIxT3JydWVjZz09

On Today's Call:

• Review:  
• Presentation: Jeff Grant and Glenn Keet, Citizen, Invitae

14 Sep 2023 9am PT/ 10am MT/ 12pm ET

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Attendees

• Keela Shatzkin, Ken Ebert, Mike Ebert, Steve Davis, Tim Spring, Trevor Butterworth, Mike Ebert, Jeff Grant, Glenn Keet, Adrian Gropper, JD, Gigo Joseph, Manjudevaraj

Announcements:

• Next meeting: 9/28

Previous Agenda Notes:

• • Transitioning to Hyperledger
    
    • Calendar transition
      • 2nd&4th Thursdays for now will continue
    • Groups io: https://lists.hyperledger.org/g/labs
      • Helen is admin
    • Notes/Materials
      • Old notes and materials have been transitioned to the wiki page
      • Can track notes real time
    • Zoom/Meeting Invites
      • Will transition to hyperledger zoom
      • Recordings are posted to youtube as “playlist” people can subscribe to
    • Chat
      • Move from slack to discord: https://discord.gg/hyperledger
      • #cardea channel under Labs 
    • Blog announcing transtition to Hyperledger:
      • https://www.hyperledger.org/blog/2023/05/10/cardea-a-privacy-preserving-open-source-ecosystem-for-verifying-health-data-joins-hyperledger-labs

New Meeting Introductions:

• • Discussion:
    
    • Glenn Keet, Lead, HIE Strategy & Business Development, Ciitizen, Invitae
    • Jeff Grant, Lead, HIE Implementation, Ciitizen, Invitae
  • 
  • Focus areas:
    • Populations
      • patients with Cancer
      • patients with Epilepsy
    • Connecting eligible patients to clinical trials
  • Patients are entitled to receive access to their medical records 
    • HIPAA 1996
    • 21st Century Cures Act 2018 (2021 enforcement)
  • Cures Gateway solution
    • self service solution to remotely request & receive their medical data
    • Identity verification
      • NIST IAL2
      • Standard protocols for interacting with HIEs
  • PHA = Personal Health App
    • 2% of the population have one
    • Ciitizen offers one to close the market gap
    • PHA has no cost to connect with Cures Gateway
    • Workflow:
      • Use 3rd party for id proofing technology: Persona
  • What's the point?
    • Solve a problem for HIEs with Cures compliance
    • Give patients access to their own records
      • enable sharing with research grade "computable" format
        • For second opinions and follow up care, sharing with providers
      • Marketplace for patients to be able to:
        • Find eligible trials
        • Sell their data if they want to
      • Leverage ML/AI for helping provide possible treatment options with outcome driven assessment
  • Where does the data live?
    • On the PHA (and with whatever their governance/terms and conditions are)
    • Consumer gets to choose their app and what they're willing to accept
    • Ciitizen PHA:
      • Storing the data in FHIR native solution
  • Blockchain
    • how does this get leveraged?
    • Identity credential
      • Exploring the idea of using API calls to other identity solutions to accept someone's federated solutions
      • Identity cost is a factor
      • Mutually authenticated connection allows patient and company to know they're talking to the right people
      • How to leverage in-person identity proofing?
    • Smart contracts
      • allow the patient to be able to govern who can utilize what specific data (diabetes but not MH for example)
      • Access control is also available to help manage this

Future Agendas

• • Whitepaper draft review- resuming from page 23

Call Recording: