Meeting Notes - 20190809

Owned by Deniz Coskun
Aug 22, 2019
2 min read

Hyperledger Patient Subgroup

August 9th 2019 meeting


Patient Consent

 

In attendance:

Deniz Coskun – moderator

Paty Buendia

Fabian Pie

Anil Srikantiah

 

Notes – Clinical Trial Use Case with Focus on Patient Consent discussion

  • Deniz opened the meeting with the introduction and short summary for Fabian.
  • The discussion started with the feedbacks:
    • Discussions in the group and Clinical Trials Process (CTP) definition underlined the multiple patient consent process
    • There is big interest in patient consent from different aspects, clinical trial, monitoring, EHR data integration and integration, 
    • And Consent process is most appropriate to implement in Enterprise Blockchain due to accept and deny privacy, traceability and transparency reasons
  • Fabian and Paty had already discussion in the earlier meetings especially for Monitoring Projects, using medical data, for homecare solutions, telemedicine and similar functionalities. Both see many similarities and synergies between monitoring and CTP, with important difference, regulations in CTP.
  • General discussion: Integration with a CTP Workflow is a great value, however End2End workflow is not really available.
  • Fabian have been using the data and machine learning algorithms and the future of healthcare will be heavily influenced with the AI and Data Analysis.
  • In Monitoring Fabian talked about the standard protocols, FHIR HL7. Deniz talked about the difficulties in FHIR implementation and simplified version of FHIR Argonaut. And Paty talked about her their version Smart on FHIR

http://www.fhir.org/guides/argonaut/

  • And Paty talked about her their version Smart on FHIR

https://docs.smarthealthit.org/

  • Paty recalled Deniz about their previous discussions and the API Standardization between the data and the process modules. Deniz wants the fix the scope to deliver outcomes, and he sees opportunities for the Hyperledger Community
  • Deniz asked to share feedbacks from different discussions to improve the level of common understanding and define common goals for the next activities.
  • Anil will send the possible mock-up data.
  • Hangout is much better conference call media than Uberconference


  • The following next steps have been decided after the discussions:
    • Deniz organize the next meeting, Kent may not join due to the early morning schedule in HongKong
    • Proposal for a particular treatment will be helpful to define the clinical trial with Patient Consent
    • Deniz creates a google drive to share feedbacks, and documents from Monitoring, AI and Argonaut, Smart on FHIR

https://drive.google.com/drive/folders/18YbUaKsBPCsnNfoQ0QMzg5p8cOl3P5IV

    • Paty, Fabian, Anil, Deniz upload the selected docs to share