Summary
Cardea Lab- Project Overview
Second Thursday of every month:
Join us for an overview of the project and learn more about the future path of Cardea.
9:00am to 10:00am
(UTC-07:00) Pacific Time - Los Angeles
https://zoom.us/j/91386616588?pwd=MGorZEY1V25XWkJ4dzIxT3JydWVjZz09
On Today's Call:
- Review:
- White paper
- New Cardea use cases
- Presentation:
9am PT/ 10am MT/ 12pm ET
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Hyperledger is committed to creating a safe and welcoming community for all. For more information please visit our Code of Conduct: Hyperledger Code of Conduct
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Keela Shatzkin, Ken Ebert, Mike Ebert, Steve Davis, Tim Spring, Trevor Butterworth, Mike Ebert, Jeff Grant, Glenn Keet, Adrian Gropper, JD, Gigo Joseph, ManjudevarajHelen Garneau
Announcements:
- Next meeting: 910/2812
Previous Agenda Notes:
- Transitioning to Hyperledger
- Calendar transition
- 2nd&4th Thursdays for now will continue
- Groups io: https://lists.hyperledger.org/g/labs
- Helen is admin
- Notes/Materials
- Old notes and materials have been transitioned to the wiki page
- Can track notes real time
- Zoom/Meeting Invites
- Will transition to hyperledger zoom
- Recordings are posted to youtube as “playlist” people can subscribe to
- Chat
- Move from slack to discord: https://discord.gg/hyperledger
- #cardea channel under Labs
- Blog announcing transtition to Hyperledger:
- Calendar transition
- Transitioning to Hyperledger
New Meeting Introductions:
- Discussion:
- Glenn Keet, Lead, HIE Strategy & Business Development, Ciitizen, Invitae
- Jeff Grant, Lead, HIE Implementation, Ciitizen, Invitae
- Focus areas:
- Populations
- patients with Cancer
- patients with Epilepsy
- Connecting eligible patients to clinical trials
- Populations
- Patients are entitled to receive access to their medical records
- HIPAA 1996
- 21st Century Cures Act 2018 (2021 enforcement)
- Cures Gateway solution
- self service solution to remotely request & receive their medical data
- Identity verification
- NIST IAL2
- Standard protocols for interacting with HIEs
- PHA = Personal Health App
- 2% of the population have one
- Ciitizen offers one to close the market gap
- PHA has no cost to connect with Cures Gateway
- Workflow:
- Use 3rd party for id proofing technology: Persona
- What's the point?
- Solve a problem for HIEs with Cures compliance
- Give patients access to their own records
- enable sharing with research grade "computable" format
- For second opinions and follow up care, sharing with providers
- Marketplace for patients to be able to:
- Find eligible trials
- Sell their data if they want to
- Leverage ML/AI for helping provide possible treatment options with outcome driven assessment
- enable sharing with research grade "computable" format
- Where does the data live?
- On the PHA (and with whatever their governance/terms and conditions are)
- Consumer gets to choose their app and what they're willing to accept Ciitizen PHA:
- Storing the data in FHIR native solution
- how does this get leveraged?
- Identity credential
- Exploring the idea of using API calls to other identity solutions to accept someone's federated solutions
- Identity cost is a factor
- Mutually authenticated connection allows patient and company to know they're talking to the right people
- How to leverage in-person identity proofing?
Smart contracts - allow the patient to be able to govern who can utilize what specific data (diabetes but not MH for example) Access control is also available to help manage this
- Discussion:
Future Agendas
- Whitepaper draft review- resuming from page 23
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